Result card

  • ORG3: What kind of involvement has to be mobilized for patients/participants and important others?
English

What kind of involvement has to be mobilized for patients/participants and important others?

Authors: Valentina Prevolnik Rupel, Taja Čokl, Eleftheria Karampli

Internal reviewers: Ulla Saalasti - Koskinen, Elle Kisk, Ricardo Ramos

Please find the overlapping results also in TEC3: What kind of training and information should be provided for the patient who uses Telemonitoring in home care for patients with chronic cardiovascular diseases, or for his family?

Please find the overlapping results also in TEC3: What kind of training and information should be provided for the patient who uses Telemonitoring in home care for patients with chronic cardiovascular diseases, or for his family?

 

The activities in which patients and important other need to be included are one of utmost importance in STS. Without the preparation activities for self empowerment for the patients and important ones the STS would not be possible. The diagnosis of HF necessitates that patients and families develop self-care skills and adopt lifestyle changes that facilitate controlling symptoms and slowing the progressing of disorder.

The following training/ patient education aspects were adressed:

General heart failure education

-          detection of deterioration

-          use of medication

-          diet

-          physcial activity/ exercise training

-          Smoking cessation

Telemonitoring specific training

-          training to use devices (technically)

-          training to manage the information (empowerment and self-care), interpret the vital signals and efficiently utilize them

Other training/ education

-          coping with difficult emotions

-          relaxation and cognitive symptom management techniques

-          lifestyle aspects: alcohol intake, sexual activity

-          necessity of vaccinations

-          capabilities of patients to travel or work

-          coping with individual problems, often related to comorbid conditions

-          training of relatives/ caregivers

How is the training provided:

-          in groups of 10-15 people, where patients can assist and help each other

-          through leaflets and online manuals, depending on the service

  • home visits
  • videophone
  • telephone calls or letters to the patient at home
  • 1-hours, in-person patient education program with usual discharge care
  • by technology through predischarge viewing of an educational CD-ROM
  • video to be viewed at home
  • predischarge nurse-led intensive education about HF symptoms and treatment followed by 1 telephone to reinforce education 

Please find the overlapping results also in TEC3: What kind of training and information should be provided for the patient who uses Telemonitoring in home care for patients with chronic cardiovascular diseases, or for his family?

Critical
Completely
Rupel V et al. Result Card ORG3 In: Rupel V et al. Organisational aspects In: Jefferson T, Cerbo M, Vicari N [eds.]. Structured telephone support (STS) for adult patients with chronic heart failure [Core HTA], Agenas - Agenzia nazionale per i servizi sanitari regionali ; 2015. [cited 16 June 2021]. Available from: http://corehta.info/ViewCover.aspx?id=305