Result card

  • TEC12: What kind of registers are needed to monitor the use Structured telephone support (STS) for adult patients with chronic heart failure and comparator?
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What kind of registers are needed to monitor the use Structured telephone support (STS) for adult patients with chronic heart failure and comparator?

Authors: Ingrid Wilbacher, Valentina Prevolnik Rupel

Internal reviewers: Alessandra LoScalco, Antonio Migliore, Christina Mototolea, Silvia Gabriela Scintee

A google-handsearch was done to detect already existing national and EU registers. Keywords used were „heart failure registry“, „heart registry“, heart failure audit“ and the several EU/ EUnetHTA country-names.

There are no specific registries to monitor or register the use of structured telephone support  for heart failure specifically. If a national registry is already existing and/or the EU registry is used/ planned to be used there needs to be no further register installed for telemonitoring in heart failure patients.

The telemonitoring aspects – at least „on telemonitoring yes/no“, what kind of telemonitoring is used, entry-exit date – can be easily added into an existing registry.

Several existing heart registries were found among Europe.

Examples of national registries for heart failure/ acute heart events

links

Austrian Heart failure registry

http://www.atcardio.at/fileadmin/content_atcardio/img/HI-Register.pdf

Different registries (some just regional) i.e. Deutsches Register für angeborene Herzfehler

http://www.herzregister.de/register/hintergrund/

Swedish heart failure registry

http://www.ucr.uu.se/rikssvikt-en/index.php/regarding-s-hfr/7-about-the-swedish-heart-failure-registry

Norwegian heart failure registry

http://heartfailure.no/research/

UK National heart failure audit

http://www.ucl.ac.uk/nicor/transparency/2013/heartfailure

Netherlands cardiovascular registry

http://www.cvon.eu/cvoncms/wp-content/uploads/2012/07/Eur-Heart-J-2013-CardioPulse-321-6.pdf

Irish national registry for Cardiac arrest

http://www.nuigalway.ie/ohcar/downloads/ohcar_5th_annual_report_2013.pdf

Czech republic acute heart failure registry

http://ahead.registry.cz/

Polish Silesian Center for Heart Diseases

http://www.sccs.pl/en/modules/page/upload/files/SilesianCenterforHeartDiseases-cardiovascularresearch-portfolio-1.pdf

The Danish Heart register

http://sjp.sagepub.com/content/39/7_suppl/46.refs

Lithuania Herat failure longterm registry

http://www.secardiologia.es/images/stories/file/insuficiencia-cardiaca/hf-lt_slides_amsterdam_1sep2013.pdf

Latvian registry of acute coronary syndromes

http://www.internationaljournalofcardiology.com/article/S0167-5273(07)00724-3/abstract

Belgian TVI registry

http://sbhci.org.br/wp-content/uploads/2010/11/SLIDES-DE-APRESENTA%C3%87%C3%83O52.pdf

French Registry on Acute ST-elevation and non ST-elevation Myocardial Infarction 2010

http://heart.bmj.com/content/98/9/699

BADAPIC Registry

http://www.ncbi.nlm.nih.gov/pubmed/15617639

National Registry on Cardiac Electrophysiology Portugal

http://www.elsevier.pt/en/revistas/revista-portuguesa-cardiologia-334/artigo/national-registry-on-cardiac-electrophysiology-2010-and-2011--90193330

Portuguese Registry on Acute Coronary Syndromes (ProACS)

https://clinicaltrials.gov/ct2/show/NCT01642329

Portuguese Registry on Interventional Cardiology (PRIC)

https://clinicaltrials.gov/ct2/show/NCT01867801

AMIS Plus - National Registry of Acute Myocardial Infarction and Unstable Angina in Switzerland

http://www.research-projects.uzh.ch/p4865.htm

There are already existing European registries which can be participated in.

European heart failure registry

http://www.escardio.org/guidelines-surveys/eorp/surveys/heart-failure/Pages/long-term-registry.aspx

European registry of cardiac arrest

https://www.eureca-one.eu/


Important
Partially
Wilbacher I, Rupel V Result Card TEC12 In: Wilbacher I, Rupel V Description and technical characteristics of technology In: Jefferson T, Cerbo M, Vicari N [eds.]. Structured telephone support (STS) for adult patients with chronic heart failure [Core HTA], Agenas - Agenzia nazionale per i servizi sanitari regionali ; 2015. [cited 16 June 2021]. Available from: http://corehta.info/ViewCover.aspx?id=305

References